I had a very ulterior motive when I started this blog full of crafts and recipes. With every recipe, I post the directions along with several photos. I am PHighting pulmonary hypertension. It is a battle I will lose one day. Before that happens, I want my children to have our family recipes.
I want to create a photo book that is a Pack Family Cookbook full of the recipes we love and pictures of each step of the directions. Keeping the recipes all on my blog will make it easy for me to copy the recipes and photos over to a photo book. I plan on putting photos of our family throughout our personal cookbook. I will then make two copies, one for each of our sons. When pulmonary hypertension wins, the kids will have something that will always remind them of their mommy. That was always the plan. One day when they are adults, they can tell their kids that what they are eating for dinner was Grandma’s recipe.
In the process of maintaining my blog, I felt compelled to share our story, our PHight with pulmonary hypertension. The problem with pulmonary hypertension is that it is a rare disease. Not many people know what it is. I am a nurse and didn’t know what pulmonary hypertension was. We all know what hypertension is. Regular (peripheral) hypertension is a common diagnosis. When you put “pulmonary” in front of it though, it turns into a nightmare. I bared all HERE about our PHight because awareness is the key…it is the answer. If awareness increases then funding increases. If the funding increases then the research increases. If the research increases then the treatment options increase. Eventually, we will have a cure for this dreaded disease but it starts with just raising awareness.
My blog is just a tiny part of the enormous World Wide Web. I’m in awe when folks stumble onto my website. I don’t advertise. I don’t have sponsors. I am touched when someone finds my blog and takes the time to read about our PHight. I am humbled when they take the time to leave an uplifting comment. And today, I am speechless because someone who stumbled on my blog, took the time to read our story, found it in their heart to comment, went farther than I have ever imagined.
Ms. Laura Young made a tribute donation in honor of myself to the Pulmonary Hypertension Association. This has never happened to me before. I have not ever met Ms. Laura Young. Our interaction was brief: she left a very kind comment and I responded with an appreciative comment. Yet this one person took the time to make a donation to the very organization that is funding some cutting-edge research on pulmonary hypertension. My goal with sharing our story was to raise awareness…never did I think it would lead to a donation.
Thank you Ms. Laura Young. You’ve touched my heart. The world is full of amazing people and I’m thankful that one of those amazing people stumbled onto my little ol’ blog. Ms. Laura, you have made my day, my month, my year, and my life with your thoughtful gesture.
May God bless you always.