I am blessed beyond blessed! I have been happily married for over 20 years to the love of my life, Steve. We have two amazing boys ages 19 and 6 . . . yes, I typed that right, they are 12 years apart! The docs (several fertility docs) said we couldn’t have another child after our oldest, Stevie, was born. Turns out they were wrong! Stevie and Spencer are night and day in character and the greatest kids ever!
I am a “retired” nurse…sounds way better than saying I am “disabled”. I was diagnosed with Pulmonary Hypertension (idiopathic) in 2005 and we have been fighting the PHight since then. PH is a progressive disease with no cure. Please take a moment to educate yourself about PH HERE. Want to hear about our personal journey with PH? Check out this post of mine HERE. It is a longer read but I speak from the heart in that post. Awareness leads to funding which leads to research which may someday lead to a cure. It sucks but it is what it is.
I decided shortly after my death sentence diagnosis that my PH would not define me or control me. I continued to work for over 5 years as an RN in a psychiatric crisis unit, home health, pediatrics & in management. I loved being a nurse! I accomplished as much as I could as a nurse before PH finally slowed me down and it was time to focus on what truly matters in life: family and friends.
I laugh hard, I play hard and I love hard…I refuse to lay down and wait for the inevitable. So I fill my days with crafts and cooking. I spend as much time as possible with my husband and our children. It’s been over 18 years and I still can’t get enough of my husband 🙂 Our children are our lives and I love spending every moment I can with them! When I’m not with them, I am with my best-friends who love me as I am and remind me all the time that my disability is no excuse!
I started this blog to share my ideas and to spread some hope. Just because you are diagnosed with a rare & incurable disease doesn’t mean you should crawl into bed & throw the covers over your head. Instead, you fight so you can make more memories, your family and friends deserve at least that much! So PHight with me! I make the most of every minute and I live life to the fullest! I hope you enjoy my blog 🙂 Be blessed and thankful, it’s the only way to be!